Join Rep. Steny Hoyer, the Congressional Epilepsy Caucus, Epilepsies Action Network, Epilepsy Foundation, CURE Epilepsy, Rare Epilepsy Network, DEE-P Connections and others on Tuesday, November 14, during National Epilepsy Awareness Month, to learn about the epilepsies and funding priorities that will improve access to care, health outcomes, and awareness.

Location:
In-person event at 2045 Rayburn House Office Building, 45 Independence Ave SW, Washington, DC 20515

Special Remarks by:
Epilepsy Congressional Caucus Co-Chairs: Congressmen Greg Murphy, MD (NC-3) and Jim Costa (CA-21) and Steny Hoyer (MD-5)

Speakers:

• Walter Koroshetz, MD, Director of the National Institute on Neurological Disorders and Stroke (NINDS at NIH)
• Bee Martin Lee, President and Chief Executive Officer, Epilepsy Foundation
• Dave Clarke, MD, Chief of the Comprehensive Pediatric Epilepsy Program, UT Health Austin Pediatric Neurosciences & Professor, UT Austin Dell Medical School
• Scott & Jillian Copeland, Parents of a Son with Epilepsy & Co-Founders, Epilepsies Action Network
• Gardiner Lapham, MPH, RN, Parent who lost a child to Sudden Unexpected Death in Epilepsy & Co-Founder, Chair of Partners Against Mortality in Epilepsy (PAME)

Format:

• 8:30 AM – Coffee & Refreshments
• 8:45 AM – Members of Congress give opening remarks, followed by presentations from a clinician, parents of children with various epilepsies, and advocates.
• 10:00 AM – Q&A
• 10:15 AM – Conclusion

Key Facts:

• 1 in 26 people will develop a form of epilepsy
• 3.4 million Americans live with active epilepsy, including 470,000 children and teens
• There are many different types of seizures and varying levels of seizure control
• 1 in 1,000 people die from Sudden Unexpected Death in Epilepsy (SUDEP)
• Deaths from the epilepsies among Black populations are 1.42 deaths per 100,000 compared to .86 per 100,000 among white and .70 per 100,000 among Hispanic populations